Tag - rare kidney diseases

ISN Journal Editorial Selections on aHUS Management, Rituximab Therapy, Methylmalonic Acidemia, and Rare Kidney Diseases

Kidney International® Outcomes From the International Society of Nephrology Hemolytic Uraemic Syndromes International Forum  The 2023 ISN aHUS Forum brought together global experts to discuss key challenges in managing complement-mediated hemolytic uraemic syndromes (HUS), including nomenclature, biomarkers, and treatment protocols. Key areas for future research were identified, such as genetic predisposition, optimal complement inhibitor use, and improving...

New in the ISN Rare Kidney Disease Toolkit: Webinars on IgAN and C3G

The ISN has added two new webinars to its Rare Kidney Disease Toolkit, focusing on immunoglobulin A nephropathy (IgAN) and C3 glomerulopathy (C3G). These expert-led sessions offer valuable insights into diagnosing, managing, and treating these rare but challenging kidney diseases. Watch "Advancements in C3 Glomerulopathy (C3G)," featuring David Kavanagh (UK), Alison Ma (Hong Kong), and...

Investigating the Economic Burden and Cost-effectiveness Evidence Base for Rare Kidney Diseases

Rare kidney diseases (RKD) place a substantial economic burden on patients and health systems, the extent of which is unknown and may be systematically underestimated by health economic techniques. The “Scoping Review of Economic Analyses of Rare Kidney Diseases,” written in collaboration with The George Institute for Global Health, examines the existing evidence base toward...

Back to School With the ISN Academy: Elevate Your Knowledge With Our Comprehensive Courses

As the new academic year begins, the ISN Academy is excited to welcome lifelong learners to enhance their expertise and advance their careers in kidney care with the ISN's comprehensive curriculums and courses for all levels. Access all ISN Academy courses and curriculums Here's a glimpse of what's on offer: POCUS Curriculum Course overview: Training program that...

Explore and Use the ISN Rare Kidney Diseases Toolkit – New Tools Available

The Rare Kidney Diseases Toolkit* curates resources to raise the profile and understanding of rare kidney diseases. It offers disease-specific tools and highlights the burden, gaps, and unmet needs that need to be addressed. Access the toolkit here Tools include infographics, webinars, and the EACCME-accredited ISN Complement Pathway Disease Curriculum, which reviews the pathophysiology, diagnosis and...