Events - ISN-IPNA Webinar: Cystinosis Across Life Stages: Advancing Therapeutics and Multi-Disciplinary Care for Improved Outcomes

Cystinosis, a rare and progressive metabolic disease, presents unique challenges across the patient’s life stages. This webinar will provide an in-depth exploration of the natural disease course, enabling participants to understand its progression and long-term implications. Attendees will gain insights into the evolving therapeutic landscape, focusing on recent advancements and emerging treatment options.

Special emphasis will be placed on addressing the complexities of managing adolescents and young adults with cystinosis, a transitional period marked by distinct medical and psychosocial needs. The discussion will also highlight the importance of adopting a multi-disciplinary approach, drawing on the expertise of healthcare teams to deliver personalized, holistic care that optimizes patient outcomes and enhances the overall care experience.

Join us to deepen your understanding of cystinosis and its management, and to explore strategies that drive improved quality of life for individuals affected by this condition.